Lymphie Strong Virtual Half Marathon/10K/5K Race Registration

Welcome to the first #MOVETHATLYMPH Virtual Race for 2019!!  Due to some feedback and demand from the Lymphie community, we are introducing the first ever Half Marathon & 10K into the #MOVETHATLYMPH Challenge Series! Challenge duration: March 1 – 22, 2019 Registration window:  Feb 20 – 28, 2019 We are changing several things in 2019!! New […]

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Lymphedema in 1998

Many times throughout this blog I have referred to the billboard that I passed on that fateful Monday in May when I was on my way to my first day of work right after graduating with my BS in Computer Science. I was excited and nervous. Full of promise and hope for my future in […]

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5 Thoughts On An Old Photo

This 2004 photo popped up on my memories recently. It’s a photo that sits on the desk in our office at home. Years ago, I found the original print copy, scanned it, and framed it. The frame actually covers my legs, and you can see why. Most of my blog posts are kind of long, […]

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The Lymphedema Table – For Lymphies And Their Food

We have reached a milestone. One of our subgroups, The Lymphedema Table – For Lymphies And Their Food, has reached 1,000 members. You might yawn or say whoop-dee-doo accompanied by an eye roll. Why is this such a big deal to me? I’ll tell you why. The Relevance Every CDT intake or admission I have […]

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Super Bowl Ready With My New Leg Rest

That’s right, I’m ready for Super Bowl 2019. Most people are in the market for a new gigantic TV or a super comfy leather recliner, but my new leg rest came in the mail recently and I’m absolutely excited. With bilateral lower extremity lymphedema, an elevated leg rest is actually a considerate gift to a […]

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Starting Over

Do you have photos that haunt you? I do. This was posted in early 2017 in the Lymphie Strong Inspiration Group while on #keto. Gluten free is what helped my initial reduction in 2015, but the ketogenic diet put me into heels. All day. This photo or a better version of it is my goal […]

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Thrilled and Honored to Become Part of the JOBST USA Team!

I am so thrilled and honored to announce that I recently made a greater commitment to consistently advocate for patients and to push for systematic change surrounding the treatment and management of #lymphedema by becoming a JOBST USA Ambassador. This role includes not only bringing you information on the latest technology and products, but also […]

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Oh The Places We Will Go

Our member, Ruth C., rocked social media with this photo she shared in our group and within other LE communities. Self care is critically important, and it’s not always convenient to do. Kudos to Ruth! International Travel “A girl’s gotta do what a girl’s gotta do after 14 hour flight Brisbane to Dubai, 2 hours […]

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2018 Best 9

2️⃣0️⃣1️⃣8️⃣ best 9️⃣ on Instagram 🎊🎆 This year marks 25 years that I developed #lymphedema. A quarter of a century. For most of my adult life, I hid my genetic #raredisease either in anger, denial, or embarrassment. To see that together these photos generated 11.6K likes for the unknown like LE is shocking, but I’m […]

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Winter Wonderland Race Testimonial from Raleigh, NC

Testimonial from one of our members in Raleigh, NC. This is how it’s done!! Congratulations, Kelly! Finish Line “Hooray! I signed up for the half-marathon cumulative distance (in chunks and walk/run since I couldn’t do all at once). I rocked that goal and actually hit 23.25 miles so far. I commit to achieving the full […]

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