Fake It Until You Make It

I think I have the Monday Blues, and it’s my blog and I’ll cry if I want to. Today I’m really feeling my LE. It’s 95F but it “feels like” 102F with 44% humidity. I have lymphedema in both legs and my right leg is throbbing. THROBBING!!!! It seems impossible to me that we are […]

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Lymphedema Distichiasis Syndrome? You have it too?

A few days ago a new member posted in the Official Lymphie Strong Inspiration Group about the lovely genetic defect known as Lymphedema Distichiasis Syndrome. I say lovely dripping with sarcasm. He didn’t think anyone would respond, but it exploded into a thread with over 50 comments. Out of roughly over 2,000 people, four people […]

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Leveraging Live Technology for Lymphedema Support

Facebook Live© is a live streaming technology that has been available since 2015. In our group, we will use it to connect with lymphedema speakers in our global community that Lymphie Strong has invited and scheduled to present. A formal event will be created for each speaker. This technology is similar to FaceTime©, Skype©, WebEx© […]

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I am joining the Autumn Moon Virtual 5K because…

From across the United States to Italy, France, and Australia, find out why people who are living with lymphedema are up to the challenge and joining the Autumn Moon Virtual 5K. On behalf of The Lymphedema Running & Fitness Club and Lymphie Strong, our mission is to increase lymphedema and lymphatic health awareness by inspiring […]

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From Grief to Triumph For My Hero by Heidi

The following letter is being shared verbatim with permission of its author. A story of profound grief with the courage and strength to move forward and ultimately triumph personally. Our thoughts and prayers continue to be with you, Heidi. Hi Lymphie Strong– I needed to do some soul searching. As of the weekend before the […]

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What The Summer #MOVETHATLYMPH Challenge Meant To Me

Being part of this challenge has kept me motivated to get stronger and fitter and more active this summer. I have tried three times in the last year to complete the couch to 5k programme and three times cellulitus has meant abandoning the training. The 60 day challenge got me started again, and I have worked steadily […]

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Lymphie Strong Facebook Groups: The Next Level

For the past several months, I have been receiving some great feedback on the success of the online support groups I manage on Facebook, particularly from physical therapists in The Official Lymphie Strong Inspiration Group. It never occurred to me that a certified lymphedema therapist might need a group to recommend to their patients. I […]

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Lymphedema Not a Global Problem? I Beg To Differ

I developed LE in college.  For 21 years, I thought that myself and my Dad were the only living people on the planet with lymphedema. One man and his daughter.  Something like that saying, “Even if you were the last person on Earth, I wouldn’t wish LE on you.”  It sounds absolutely absurd to think […]

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