My Letter to the Editor of the New York Times By Susan

It is not entirely uncommon for us to come across online content from various sources of media and try to create an educational opportunity from it, since it’s a conversation that’s already started. Any opportunity to raise awareness for LE is a good one. Recently a group member, Susan, noticed a Lymphedema article posted by […]

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Lymphedema Distichiasis Syndrome? You have it too?

A few days ago a new member posted in the Official Lymphie Strong Inspiration Group about the lovely genetic defect known as Lymphedema Distichiasis Syndrome. I say lovely dripping with sarcasm. He didn’t think anyone would respond, but it exploded into a thread with over 50 comments. Out of roughly over 2,000 people, four people […]

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Overcoming 20 Debulking Surgeries As a Kid

As many of you are aware, I am the Admin for The Lymphedema Running & Fitness Club.  From time to time, someone will share a body transformation milestone in that group that will grab my attention. When I contacted Megan about sharing her story, I never dreamed that she would send me an email where […]

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A Twinkle In Her Eye

Ever struggle with self-esteem and body image issues? Living with lymphedema has both physical and psychological impacts. Read on for Mary’s story on how she lives with full body systemic LE as the result of hypothermia. The endocrine issue that caused the hypothermia five years ago for her is called Idiopathic Hypothalamic disorder. It would […]

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Father’s Day Surprise

Saturday night I got home from swimming, and this was on my doorstep. I began crying tears of joy. For those that don’t know, I developed truncal Lymphedema in my back in January 2016. No specific cause identified. This was after 22 years in my legs. It’s been a steep learning curve to manage both […]

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My Daddy Had Lymphedema Too

Note – Since this original post in 2015, my father passed away from adrenocarcinoma in June 2016 after living with lymphedema for 43 years. At the time this was written, we did not know he had cancer.  The blog was created with his support and blessing.  He said that it was time for us to […]

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That Junk in My Trunk

Let’s talk about truncal Lymphedema, or what I like to call “That Junk in My Trunk.”  Hey, we have to laugh, right? 🙂 My Lovely Little Lumps -Fergie As of January 16, 2017, it has been a year since my truncal lymphedema diagnosis was confirmed.  The new lympheversary where I received yet another gift from the one that […]

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Beyond Limits: Endless Possibilites – Gisele

Gisele DeVarennes Aubé’s story is a testament to the strength and will of the human spirit. The following blog post was written by her and shared as a member of The Lymphedema Running Club for which I am an admin of on Facebook. She gave me permission to post it on this blog. I hope […]

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My World Lymphedema Day Post – March 6, 2016

Originally written March 6, 2016 Today I wore turquoise for World Lymphedema Day. This is my story. I have had this since college in ’94. When I was 10, I was scratched by a neighbor’s cat and spent 4 days in the hospital with 104 fever. The lymph node in my right thigh turned as […]

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