Overcoming 20 Debulking Surgeries As a Kid

As many of you are aware, I am the Admin for The Lymphedema Running & Fitness Club.  From time to time, someone will share a body transformation milestone in that group that will grab my attention. When I contacted Megan about sharing her story, I never dreamed that she would send me an email where […]

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A Twinkle In Her Eye

Ever struggle with self-esteem and body image issues? Living with lymphedema has both physical and psychological impacts. Read on for Mary’s story on how she lives with full body systemic LE as the result of hypothermia. The endocrine issue that caused the hypothermia five years ago for her is called Idiopathic Hypothalamic disorder. It would […]

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Never Lose Your Childlike Wonder

Yesterday a child touched my right leg in the bleachers at a Houston Astros baseball game. I’ll get to how in a moment. I have fond memories of baseball and softball growing up as a child. As I have mentioned in other blog posts, part of the inspiration behind the fitness online support community I […]

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2018 #MOVETHATLYMPH Summer Fun 60 Day Challenge Registration

Registration is now closed. Stay tuned for updates on our participants and their achievements at a later date. Welcome to the 2nd #MOVETHATLYMPH 60 Day Challenge for 2018!! For some of you, this is your first challenge. For many of you, you’ve completed multiple challenges and you are ready to help others achieve their fitness […]

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The Heel Experiment

Good news!!! I’m down! I’m down! Probably the lowest in a long time. I actually want to cry. My right ankle is 24.8 cm and my left is 22.5. Both of my insteps are exactly the same. Precisely asymmetrical. When you have bilateral leg lymphedema, that’s a big deal. I’m back in CDT because last […]

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Nails & Lymphedema

I never said I was perfect, nor will I ever claim to be perfect. I’m as real and authentic as you can get. In a society where well manicured nails are so visible, it’s hard to balance that with living with lymphedema. It’s hard to even balance it with feeling “feminine” beyond covering legs with […]

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Cellulitis Sucks!

This piece is dedicated to all the Cellulitis Warriors around the globe with lymphedema / lymphoedema. You know who you are. Those of you, like my father, that have been in the Intensive Care Unit maybe once, maybe multiple times from cellulitis. Whether you have survived 1 bout or 100, you know it is an […]

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